Post chemo teeth & gum problems

Discussions relating to primary breast cancer and treatment. Also for those recently diagnosed, and for those concerned about possible symptoms of breast cancer.
Jan
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Postby Jan » Thu Mar 01, 2007 9:07 pm

Hi chery,sorry I didnt see your post earlier.
I guess it has all been said on here now about Zometa.
My oncol just said to me after 3 cycles that he had spoken
to his colleagues & they have decided to stop using it.
he said some people have very poor teeth,some broken
right down to the jaw & Zometta can cause Jaw Death
the jaw can break. He said I had had a good kick start
with 3 cycles. I had already had all my teeth done when
I went onto it. My teeth did start to recede again a little
last year. Only a couple of teeth . This could have been
my age of course. lol

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chrismelb
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Hey Kj i was a dental nurse for about 12 years too.......

Postby chrismelb » Thu Mar 01, 2007 9:57 am

and i think oral hygiene plays a big part too. I think when people are having chemo they may be a bit slack with the floss and the brushing because they feel like cr*p. So ladies, hit the toothbrushes and it may help lessen the dental bills. I feel blessed to have good teeth from my parents and my mother force fed me fluoride tablets when i was young. Luckily i escaped any ill effects from chemo.

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Kj
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solution!!!!!!!!

Postby Kj » Wed Feb 28, 2007 9:08 pm

Ok girls I think I have it
I spoke to my amzing SIL today and she gave me so much info that my chemo brain cant hold but Ill give it a bash
our saliva has calcium and phosphates when we eat our saliva naturally rinses our mouths of all the bad stuff like acids and replaces it with the good stuff (im trying to make sense it been a bad week) when we have chemo we get dry mouth and these acids in foods are not rinsed with the calcium and phsphates hense the deteriation of teeth the more restorations (fillings) you have the worse it is rinsing with bicarb or water wont fix it BUT there is a new product called tooth moouse that replaces calcium and phosphates and can actually reverse the affects of the chemo eg if you are starting to get white spots on your teeth this will reverse it which is great news there is also chewing gum which can help aswell she is coming over next week with some info and if it is ok with the mods (janine) ill post it for you it has a section on cancer patients .. you can only get this stuff through dentists or dental companies I can order it Bulk if anyone interested (saves a trip to dentist) and send it to you .. I was a dental assistant for 10yrs and am planning on becoming a dental hygienist and I know there is nothing worse than forking out tooo much money for dental bill even my SIL agrees there is not enough education about this if we where told to get tooth moouse before chemo it would save a lot of hassle
hey Im on mission I plan to change it well after I get in oh AND THEN I HAVE TO PASS LOL
Hope this helps
Real friends are the ones who love you for being you!!!! (that is soooo important)
from Kim xxxx

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Janine
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Postby Janine » Wed Feb 28, 2007 12:46 pm

Cheryl, luckily the dental ppl have been able to patch things up - no extractions. They are very keen to avoid anything major. I believe even ulcers can go down to the bone and could be a problem so we do need to be careful.

I have bone mets and as far as I know, will be on Zometta indefinitely but they might continue to reduce the frequency. My latest bone density test showed an improvement (YAY!) so the zometta must be working. I'd prefer to think it was all the exercise I'm doing though! :biggrin:
Janine
1st dx ILC st 3, er+, pr+, her2-, T3, N1 1998. Bone mets 2004. Liver mets 2008. Leptomeningial mets 2009.

cheryl
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Postby cheryl » Wed Feb 28, 2007 12:22 pm

Janine wrote:If you are on zometta, you must not get any major work done on your teeth except by a dentist who is aware of the (slight) risk of ONJ. (OsteoNecrosis of the Jaw). You need to avoid any infection into the jaw bone.
Where I go, everyone who is on zometta is seen by the dental ppl. I have had some minor work done but with heaps of antibiotics.

I've been on zometta for over 2 years now and they are going to cut me back from monthly to 2 monthly. They seem to be doing that with most ppl who've been on it for a while.

thanks for the clarification/info Janine. when I read about Zometa and my likelihood of having it, I got a lot of dental work done, but my teeth are not what you would call "flash". have you ever had any extractions????

I take it that you have bone mets?? how long are you going to stay on the Zometa???
Cheryl

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Janine
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Postby Janine » Wed Feb 28, 2007 11:05 am

If you are on zometta, you must not get any major work done on your teeth except by a dentist who is aware of the (slight) risk of ONJ. (OsteoNecrosis of the Jaw). You need to avoid any infection into the jaw bone.
Where I go, everyone who is on zometta is seen by the dental ppl. I have had some minor work done but with heaps of antibiotics.

I've been on zometta for over 2 years now and they are going to cut me back from monthly to 2 monthly. They seem to be doing that with most ppl who've been on it for a while.
Janine

1st dx ILC st 3, er+, pr+, her2-, T3, N1 1998. Bone mets 2004. Liver mets 2008. Leptomeningial mets 2009.

cheryl
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Postby cheryl » Wed Feb 28, 2007 6:48 am

thanks for the tip ladies. I will surely follow.

Jan your quote = My oncol does not use Zometa anymore. It can cause Jaw Death in some people with vry poor teeth=

does this mean if you have good teeth you will be okay???

anybody out there on Zometa whose teeth are not all that good???

i'm going back on Zometa today and my teeth are not great.
Cheryl

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Kj
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Postby Kj » Tue Feb 27, 2007 8:00 pm

just a little tip If you are drinking juices make sure you dont brush your teeth straight after your morning juice and also try to rinse your mouth out with water after juice and wine or anything acidic also you prob know this but stay away from mouth wash like listerine it kills all the good bugs.. I will try to get more info for you aas I have alot of friends in dental industry (I'm planning on doing bach of oral health next yr but will take 3 yrs so not gonna be much help till qualified hygienist )(if I get in)(i better get in) xxxx Ill get back to you xxxxxx
but try to keep mouth moist with sugarfree gum and lots of water
Kim
Real friends are the ones who love you for being you!!!! (that is soooo important)

from Kim xxxx

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Postby yowyow » Tue Feb 27, 2007 7:00 pm

On the o/seas site there have been so many answers to this subject.

Chemo' causes reduction in saliva which promotes tooth decay.
Radiation does the same.
Anti-depressant drugs also effect saliva production.
Sleeping tablets effect saliva production.
Tooth whitening toothpaste damages enamel and dries teeth.

Still no answer on whether these problems will be on-going, most girls are only just out or a few years out of chemo'

Will keep checking out the posts and advising here.

Using chewing gum will help the mouth and teeth stay moist though.

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karin
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Postby karin » Tue Feb 27, 2007 1:30 pm

Hi Nav,
I think this is an exellent topic,
I have been told by several people that chemo can have an affect on your teeth, one being from the
nurses that came to see me after my op.
My two frount teeth have become very thin since having chemo and I have had to have one
repaired already with the other one just a matter of time before it breaks off.
I t is only logical that things like this go wrong in our bodies after such radical treatment and I too
believe that more information should be made available before treatment starts, I know all the information
can be overwhelming at the start of bc but I would rather know instead of hearing it through the grapevine.
I also have been told by my dentist that radiotherapy can have the same bad affect on your teeth as well,

Karin xxx

Jan
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Postby Jan » Mon Feb 26, 2007 9:37 pm

Good subject!

I had all my teeth done after chemo in 2005.
It ended up costing me $3,000!!
I had always visited the dentist but after chemo a lot
of my teeth had started to recede I had other fillings done
as well for that amount of money.
The chemo has this big dry effect on everything,even my
throat felt burnt after 10 cycles.
My dentist told me she sees it quite often. I had to have
some of my teeth topped up where they had receded again
' last year. They also ache & are quite sensitive so I have this
paste called GC tooth mousse PLUS she gave me to rub on
them at night after brushing. I also use sensedene toothpaste.



My oncol does not use Zometa anymore. It can cause Jaw Death
in some people with vry poor teeth.

Looking back now I don't know how I did it.I just really wanted
my teeth to be nice again,they felt yukky after all that chemo.
It also is good to keep them clean in case of infection .We don't
want our immune to struggle anymore than it has to.
:biggrin:

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Postby jezza » Mon Feb 26, 2007 8:48 pm

You've really hit a nerve (sorry about the pun) with this topic nav. Posts are coming in thick and fast. ...on both sides of the world.

Really, teeth are the last thing you would think about when chemo is mentioned but maybe more info should be made available from the start. Is it only certain drug combinations or what?

You really don't need to have to cope with expensive dental treatment after chemo if there is any way it could have been prevented.

jezza

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Postby yowyow » Sun Feb 25, 2007 8:38 pm

Havn't got the answer whether it is an on going prob' but OMG the stories of root cannals and major crumbling is a prob'
We need to get our Onc's or someone to look into this and advise re preventative dental probs'.

I am hearing stories of woman with no teeth left at all!!!!!

Am seeing surgeon tomorrow, will casually ask about dental probs.

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Postby cheryl » Sun Feb 25, 2007 3:35 pm

when you find out the answer will you post back to here. it would be good to know.
Cheryl

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Postby yowyow » Sun Feb 25, 2007 12:11 pm

Thanks Jezza, Very new into the replies, but will be very interesting following it. I have posted asking the question if
our teeth do regain strength (if thats the way to put it) or will this be an ongoing problem.


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