Update

Discussions relating to Gynaecological cancers and treatment, risk, symptoms, etc
JudyB
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Re: Update

Postby JudyB » Tue Nov 24, 2015 9:09 pm

Thank you again girls, yes it is a wonderful relief, I keep thinking "i'm so happy" lol. My feet and fingers are still much the same although I must admit that today my feet seem to feel a little better when I am not walking on them. It feels like I have gravel in my shoes and I am constantly walking on gravel, it's awful.

Jezza I had a lovely time at the pub, we went out to lunch with some of Pete's uni friends that I had never met before. They were lovely people, the weather was glorious and the food and wine was great. As I said on Facebook I actually felt like I was part of society again. I can even feel a little fuzz on the back of my head :v_happy:

Pete and I went down to Colac for the night yesterday as he had some business there and we drove down to Apollo Bay. It has been years since we have been there and it was just wonderful, can't believe we waited that long. I drove all the way and didn't feel like falling asleep once. It's been a long time since I could do that so looks like my cpap machine is doing its job too.
DX Sep 09, LB mast with axillary diss. Grd 2 Ductal Carc. 50mm diam. Margins clear. 1/13 nodes. OR+ PR+, HER2- . FEC x 3, Taxotere x 3, RADS x 30, Tamoxifen, DIEP reconstruction April 2011, Femara 2013, Oophorectomy 2013.

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jezza
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Re: Update

Postby jezza » Tue Nov 24, 2015 6:25 pm

That really is good news Judy. I hope you can now relax and enjoy your time off work now that worry is lifted off your shoulders.

How are you feeling now (saw that you were at a pub a few days ago...lol). I know you were having trouble with your feet and fingers and I guess that's something that sticks around for a while. I bet you were terrified by the time you got to your Drs appointment....such a horrible feeling waiting to hear what they have to say but I'm so thrilled that all is good!

hugs

jezza
Dx Jan. 1992 9mm Grade 3 IDC node neg. LB mast. Prophylactic RB mast. 6 months later. No chemo. No rads. Saline implants. 22 years NED. (No Evidence of Disease)

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Janette
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Re: Update

Postby Janette » Tue Nov 24, 2015 11:11 am

Judy, I'm so happy to hear the good news, about time and let's hope it continues. :hugs:
Janette


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Re: Update

Postby The new girl » Mon Nov 23, 2015 10:49 pm

:v_happy: that's great news Judy so happy for you,you can breath easy,hope you recover from side effects quickly and get on with life :hugs: .......Rosa

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Re: Update

Postby schoolteacher » Mon Nov 23, 2015 9:32 pm

:bananas: That definitely calls for the dancing bananas! So relieved for you

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Re: Update

Postby ruth1 » Mon Nov 23, 2015 6:54 pm

Judy, that's such great news - you must be sooo very relieved and able to breath again now. :clap:
Dx IDC 2cm grade 3 ER/PR pos. DCIS grade 3, fam hist metastatic BC. Bi lat mastectomy, FEC x 4, surgical revision pending. AI x 5 yrs Femara

JudyB
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Re: Update

Postby JudyB » Mon Nov 23, 2015 6:41 pm

I saw the specialist today and am happy (and extremely relieved) to say that he had a look and a feel and said it's all good. Bleeding caused by scarring from hysterectomy and radiotherapy and general dryness from menopause and oestrogen blockers. :happydance:

Thank you all for your concern and good wishes. Another bullet dodged. :grouphug:
DX Sep 09, LB mast with axillary diss. Grd 2 Ductal Carc. 50mm diam. Margins clear. 1/13 nodes. OR+ PR+, HER2- . FEC x 3, Taxotere x 3, RADS x 30, Tamoxifen, DIEP reconstruction April 2011, Femara 2013, Oophorectomy 2013.

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chrismelb
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Re: Update

Postby chrismelb » Thu Nov 19, 2015 10:21 am

Big hug for you Judy. Distraction, distraction, distraction!!! That is how i try to cope. xoxo
Dx 9/03 EBC
5/12 ABC bones-Herceptin,Tamox&Zometa
8/12 Liver mets-Abraxane,Herceptin&Zometa
6/13 Xeloda/Tykerb Xgeva
11/14 TDM1 Xgeva
1/15 Rads to tumour in head
2/16 Whole brain rads lepto. mets, continue TDM1
8/16. Navelbine, Herceptin
1/17 Neratanib Xeloda & Herceptin.

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Re: Update

Postby schoolteacher » Wed Nov 18, 2015 8:59 pm

Hi Judy
I hope your symptoms turn out to be something none threatening but totally get your worry. Try to breathe and relax until Monday Thinking of you :hugs:

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kiwijan
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Re: Update

Postby kiwijan » Wed Nov 18, 2015 5:33 am

:hugs:
Stage 1; Grade 11; bc. ER/PR positive; lumpectomy and rads. Finished 5yrs of tamoxifen on 1/11/10

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Re: Update

Postby Marydean » Tue Nov 17, 2015 10:46 pm

Hang in there Judy. :hug:
Dancing through life, healing every cell in my body.

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Re: Update

Postby The new girl » Mon Nov 16, 2015 8:37 pm

:hugs: oh judy I hope the bleeding is not what your dreading,I know what you mean about doctors not saying much to protect you but like you I would rather know. Keep my fingers and toes x for you,.....rosa

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Janette
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Re: Update

Postby Janette » Mon Nov 16, 2015 1:07 pm

Thanks for the update Judy. I hope the lady with similar symptoms has spelled out what is actually happening with yours.

It must be so difficult for an Onc to know what approach is best for patients. I would think you have every right to insist that you be told exactly what is going on. I can only imagine how horrible waiting for your appointment will be for you. Please let us know how it goes. :hugs:
Janette




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Re: Update

Postby ruth1 » Mon Nov 16, 2015 11:13 am

my heart goes out to you Judy - I just cant begin to imagine what it must be like at the moment for you - you have so much to cope with. Chemo itself is hard enough but add all the stress on top of it and no wonder you are scared. I am like you insofar as I would rather be told the truth of it so I know exactly whats what.

I really hope you recover quickly from the chemo se's -none of it is easy. Having so many adds up and becomes difficult to keep on top of. Taste buds returning is one plus - I remember tasting food again and not just metal - it was sooo good.

I hope the sunny weather can help you warm up all over. Waiting for such an important appointment will do your head in so I hope you can find some good reading etc to keep you occupied and stop your mind from going over things. :hugs:
Dx IDC 2cm grade 3 ER/PR pos. DCIS grade 3, fam hist metastatic BC. Bi lat mastectomy, FEC x 4, surgical revision pending. AI x 5 yrs Femara

JudyB
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Update

Postby JudyB » Mon Nov 16, 2015 10:42 am

As many of you know I am just over three weeks out of my last chemo. I have found it all very difficult this time around and am very happy to have finished with it. My taste buds have come back which is one of the things I find the most difficult to handle but my feet and fingers are still suffering badly with neuropathy. I feel like I have had cold aching feet for months now. I sat out in the garden yesterday afternoon in the sun and it was lovely, am hoping to do the same this afternoon. My energy levels are incredible low so I am trying to do a walk each day but they are very very short, hopefully I will be able to build them up soon.

I have read that this cancer is likely to recur within three years if it is going to and unfortunately I have had some bleeding very similar to the first signs that I had of this cancer. This freaks me out. I sent an email to my gynecologist asking if I should have my appointment moved forward from mid December and he has made me a new appointment for next Monday. That scares me too. I have put a message on the FB uterine cancer group that I belong to and one woman came back saying that she had similar and it turned out to be scarring from the operation that had formed a pocket and collected blood and all was ok for her. This gives me a little bit of hope that there are other things it can be but I am still filled with dread. I also read that if my particular type of cancer recurs it is generally not considered curable. To say I am scared is an understatement. My doctor tends to keep things to himself rather than 'scare' me but he doesn't realise I would rather know up front. When he finally diagnosed me I said to him that I knew it was cancer, he replied with 'so did I' I wasn't happy at the time as I had asked him often what else it could be. He should have been up front with me. I will have to push it this time. It's always nice to have hope but false hope is not what I want.

Anyway I will try not to dwell on it and enjoy the nice weather while it lasts. I will worry about it next Monday. Can't say I am looking forward to that appointment.
DX Sep 09, LB mast with axillary diss. Grd 2 Ductal Carc. 50mm diam. Margins clear. 1/13 nodes. OR+ PR+, HER2- . FEC x 3, Taxotere x 3, RADS x 30, Tamoxifen, DIEP reconstruction April 2011, Femara 2013, Oophorectomy 2013.


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