Triple Negative & BC Gene
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- Your Maj
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I qualified for testing because I am adopted, 39 at dx, basal type tumour, triple neg. Got the results today - no gene mutation they could find. Both my Onc and the pathologist recommended testing as it appeared very likley. Note that because I am negative my twin sister is now not elegible for testing nor is my daugther or neice. They do however qualify for yearly mamogram's on the public system as the genetics department have made that recommendation. I have been told my daughter now is considered to have a slightly higher risk than normal of breast cancer due to her mother having breast cancer. Goes to prove there are possible gene mutations out there that don't know about yet.
For now I am just very happy with the results. The end of treatment is now firmly in sight.
Hugs
Kazza
For now I am just very happy with the results. The end of treatment is now firmly in sight.
Hugs
Kazza
- Doxiamonev
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Hugs
Doxia
Some people are always grumbling because roses have thorns; I am thankful that thorns have roses." Alphonse Karr
Dx 27.12.07,Gr 3, IDC Lt breast 1cm (Prim Ca) & 2.5cm (L/Node)
Bilateral Mastectomy & tissue expanders inserted, Axc. clearance 1/17+, Triple Neg.Tx 4 AC chemo,12 wkly Taxol (28/7/08)2 yrs NED!
Doxia
Some people are always grumbling because roses have thorns; I am thankful that thorns have roses." Alphonse Karr
Dx 27.12.07,Gr 3, IDC Lt breast 1cm (Prim Ca) & 2.5cm (L/Node)
Bilateral Mastectomy & tissue expanders inserted, Axc. clearance 1/17+, Triple Neg.Tx 4 AC chemo,12 wkly Taxol (28/7/08)2 yrs NED!
- mum2chloe
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Hi Sach,
I had gene testing Brca1&2 sequencing, MLPA analysis and P53, all came back negative. I was dx at 28 with bc and my mum at 37, hence why i was recommended to have genetic testing. We are in a grey area they are saying that there it is a chance it is gene related, wait and wait until there are more scientific breakthroughs.
Hence why i went ahead and had my ovaries removed to.
I had gene testing Brca1&2 sequencing, MLPA analysis and P53, all came back negative. I was dx at 28 with bc and my mum at 37, hence why i was recommended to have genetic testing. We are in a grey area they are saying that there it is a chance it is gene related, wait and wait until there are more scientific breakthroughs.
Hence why i went ahead and had my ovaries removed to.
Dx July 2002 age 28. ER, Her2 pos 96mm tumor. 8/12 nodes.
Mast. Chemo AC & Tax,Rads, Tamoxifen & Zolodex,
Nov 2008 Oophorectomy, Arimidex, Femara.
Oct 2011 Recon surgery LD flap
May 2012 Dx Liver mets , 2yrs Abraxane & Herceptin.
June 2014 Aromasin & Herceptin
Mast. Chemo AC & Tax,Rads, Tamoxifen & Zolodex,
Nov 2008 Oophorectomy, Arimidex, Femara.
Oct 2011 Recon surgery LD flap
May 2012 Dx Liver mets , 2yrs Abraxane & Herceptin.
June 2014 Aromasin & Herceptin
- Doxiamonev
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Hi Sash,
I am triple negative and have had both genetic testings done- BRAC & MLPA.
I didn't have any BC cancer history in my family but I have a younger brother who was dx with prostate cancer at the age of 27. The genetic dr's felt my cancer may be genetic related as apparently breast and prostate cancer are linked so they recommended genetic testing.
I got my results and both came back negative but I was told that there are so many unknown genes that who knows? I was told I will be informed when new genes are discovered & if they feel I am eligible they will contact me- so who knows.
I don't know why some doctors want testing for some and not for others.
I am triple negative and have had both genetic testings done- BRAC & MLPA.
I didn't have any BC cancer history in my family but I have a younger brother who was dx with prostate cancer at the age of 27. The genetic dr's felt my cancer may be genetic related as apparently breast and prostate cancer are linked so they recommended genetic testing.
I got my results and both came back negative but I was told that there are so many unknown genes that who knows? I was told I will be informed when new genes are discovered & if they feel I am eligible they will contact me- so who knows.
I don't know why some doctors want testing for some and not for others.
Hugs
Doxia
Some people are always grumbling because roses have thorns; I am thankful that thorns have roses." Alphonse Karr
Dx 27.12.07,Gr 3, IDC Lt breast 1cm (Prim Ca) & 2.5cm (L/Node)
Bilateral Mastectomy & tissue expanders inserted, Axc. clearance 1/17+, Triple Neg.Tx 4 AC chemo,12 wkly Taxol (28/7/08)2 yrs NED!
Doxia
Some people are always grumbling because roses have thorns; I am thankful that thorns have roses." Alphonse Karr
Dx 27.12.07,Gr 3, IDC Lt breast 1cm (Prim Ca) & 2.5cm (L/Node)
Bilateral Mastectomy & tissue expanders inserted, Axc. clearance 1/17+, Triple Neg.Tx 4 AC chemo,12 wkly Taxol (28/7/08)2 yrs NED!
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- Enlightened one
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Hi Sach,
I was told should have genetic testing because I had triple negative breast cancer at 30 and because my mum had ovarian cancer. I tested positive to a BRCA 1 mutation. Was a bit difficult to track the gene fault because it came through my mum's father and his father without causing them ill health.
Lisa
I was told should have genetic testing because I had triple negative breast cancer at 30 and because my mum had ovarian cancer. I tested positive to a BRCA 1 mutation. Was a bit difficult to track the gene fault because it came through my mum's father and his father without causing them ill health.
Lisa
- Broni
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I have no family history of breast cancer, however there is a prevalence of other cancers on my fathers' side of the family.
Neither my oncologist nor my breast surgeon will discuss genetic testing for me irregardless of my triple neg status, because I am not "high risk" - it's hard to know why some doctors advocate for testing and others do not
Neither my oncologist nor my breast surgeon will discuss genetic testing for me irregardless of my triple neg status, because I am not "high risk" - it's hard to know why some doctors advocate for testing and others do not
Broni
[color=blue]life isn't about waiting for the storm to pass - it's about learning to dance in the rain[/color]
DX 12/09/07 Gr 3 DCIS
RB Mastectomy, ANC 11/10/07
9/27 lymphnodes
Triple Neg
dose dense 4 x AC 4 x taxol
40 rads
Prophylactic LB mastectomy 17/12/09
Still dancing with NED, 7 years on
[color=blue]life isn't about waiting for the storm to pass - it's about learning to dance in the rain[/color]
DX 12/09/07 Gr 3 DCIS
RB Mastectomy, ANC 11/10/07
9/27 lymphnodes
Triple Neg
dose dense 4 x AC 4 x taxol
40 rads
Prophylactic LB mastectomy 17/12/09
Still dancing with NED, 7 years on
Hi Sach,
I think the prerequisite for the testing is a close family history. I'm sure there are lots of triple negs without a family history. One of the genes the BRCA1 I think is 90% odd triple neg though.
http://www.cancer.gov/cancertopics/factsheet/Risk/BRCA
I think the prerequisite for the testing is a close family history. I'm sure there are lots of triple negs without a family history. One of the genes the BRCA1 I think is 90% odd triple neg though.
http://www.cancer.gov/cancertopics/factsheet/Risk/BRCA
Janette
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Triple Negative & BC Gene
Hi all,
I've noticed a lot of you have had genetic testing and some of you had your ovaries removed.
I was 31 when diagnosed and absolutely no family history whatsoever (both grandmothers still alive).
I've heard that being triple negative may indicate you carry the gene, is this correct?
None of my medical team (who are all great) have ever mentioned genetic testing and when I asked they said it would be highly unlikely I carry the gene.
For those of you that had the gene test, did you have a family history or was it just something your medical team recommended because you were young or had a specific type of BC?
Sach
I've noticed a lot of you have had genetic testing and some of you had your ovaries removed.
I was 31 when diagnosed and absolutely no family history whatsoever (both grandmothers still alive).
I've heard that being triple negative may indicate you carry the gene, is this correct?
None of my medical team (who are all great) have ever mentioned genetic testing and when I asked they said it would be highly unlikely I carry the gene.
For those of you that had the gene test, did you have a family history or was it just something your medical team recommended because you were young or had a specific type of BC?
Sach
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