Triple Neg Girls

To keep information about Triple Negative Breast Cancer together and easier to access.
daffodil
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Postby daffodil » Sat Apr 04, 2009 10:50 am

Hi Triple Neg girls,

Last night visited my onc :clap: he said all okay at this time. :v_happy: See the breast physician in October. Did ask a few questions regarding triple negs relationship to BRCA 1 and 2. Apparently my initial pathology results did not show any relationship to genetics. Hope he is right - he did, however, suggest that my daughter who is now 37 start having regular mammograms to be on the safe side.

Daffodil

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Doxiamonev
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Postby Doxiamonev » Fri Apr 03, 2009 10:50 pm

You remembered Dee!! :clap:
So it's the commencement not the finishing treatment? Is that right? Sorry a "not with it" day today :roll:
Hugs

Doxia
Some people are always grumbling because roses have thorns; I am thankful that thorns have roses." Alphonse Karr

Dx 27.12.07,Gr 3, IDC Lt breast 1cm (Prim Ca) & 2.5cm (L/Node)
Bilateral Mastectomy & tissue expanders inserted, Axc. clearance 1/17+, Triple Neg.Tx 4 AC chemo,12 wkly Taxol (28/7/08)2 yrs NED!

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Janette
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Postby Janette » Fri Apr 03, 2009 10:34 pm

Molly positive remember. :hugs:
Janette


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molly
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Postby molly » Fri Apr 03, 2009 10:04 pm

Oh joy! I'm hormone positive so that means I'll never be 'cured?' Just what I was missing!! Another thing to look forward to.

Positive, positive

Molly
Dx 10 Feb 2009 Stage 1 Grade 2 IDC Lumpectomy N=0, ER+, PR+

karene8
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Thanks Dee

Postby karene8 » Fri Apr 03, 2009 8:31 pm

Thanks Dee,

I do believe that is right. I have been reading on a breast cancer website from the U.S. and it states everything from dx.

Thanks for asking for me, I appreciate it thanks.

Love Karen XX

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pinball wizard
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Postby pinball wizard » Fri Apr 03, 2009 12:19 am

Karene,

In answer to your question on this, I asked my oncologist today, and he said it as 2 years from the diagnosis date. By that, I would mean that when you get diagnosed, you get something done about it...as in operation or start treatment.

BUT, the thing is that one thing I have learnt is that everyone is different, so best to check with your onc...but hope this helps you a bit.
love dee xx

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Doxiamonev
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Postby Doxiamonev » Tue Mar 31, 2009 7:30 pm

Hugs

Doxia
Some people are always grumbling because roses have thorns; I am thankful that thorns have roses." Alphonse Karr

Dx 27.12.07,Gr 3, IDC Lt breast 1cm (Prim Ca) & 2.5cm (L/Node)
Bilateral Mastectomy & tissue expanders inserted, Axc. clearance 1/17+, Triple Neg.Tx 4 AC chemo,12 wkly Taxol (28/7/08)2 yrs NED!

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jayem
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Postby jayem » Tue Mar 31, 2009 5:34 pm

Jan

Dx 20 Sept 2006, 2 cm IDC + DCIS, 1/16+ node, ER+, PR+, HER2-, 4 AC, 4 Taxol, 33 rads
CFEM Trial 5 years Arimidex, 5 year SOLE trial Femara
Dx Aug 2016 neuroendocrine cancer in pancreas, mets to liver, abdominal nodes, hip, skull, scalp and breast.

annette
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Postby annette » Tue Mar 31, 2009 5:16 pm

DX 01/03/08 Grade 2 ,8mm IDC 0/2Nodes, er60%+, pr90%+, 25 Rads plus 5 boosters, Tomoxifen,
22/07/08 surgical biopsy for 1.5cm tumor. (b9) Monthly Zoladex injections & Femara. Ovary removal 20 Jan 09

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chrismelb
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Postby chrismelb » Tue Mar 31, 2009 12:49 pm

Nav that is disaappointing to read re ER+ never being classified as cured. i say to people that i am "supposedly cured' now but it is early days yet.
I take my anniversary from the day the onc told me after my surgical biopsy, Sept 15th 8.30pm. If it is after all surgeries completed that pushes it to November. If it is after chemo that takes it to May19th. All very confusing. No matter what, i am just about 5 years down track any way!
Dx 9/03 EBC
5/12 ABC bones-Herceptin,Tamox&Zometa
8/12 Liver mets-Abraxane,Herceptin&Zometa
6/13 Xeloda/Tykerb Xgeva
11/14 TDM1 Xgeva
1/15 Rads to tumour in head
2/16 Whole brain rads lepto. mets, continue TDM1
8/16. Navelbine, Herceptin
1/17 Neratanib Xeloda & Herceptin.

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Broni
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Postby Broni » Tue Mar 31, 2009 9:54 am

I'd forget the sticky notes :pmsl:
Broni

[color=blue]life isn't about waiting for the storm to pass - it's about learning to dance in the rain[/color]


DX 12/09/07 Gr 3 DCIS
RB Mastectomy, ANC 11/10/07
9/27 lymphnodes
Triple Neg
dose dense 4 x AC 4 x taxol
40 rads
Prophylactic LB mastectomy 17/12/09
Still dancing with NED, 7 years on

cheryl
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Postby cheryl » Tue Mar 31, 2009 6:42 am

at work I have yellow stickies everywhere. My manager calls them my "short term memory"
Cheryl

karene8
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Yellow sticky notes

Postby karene8 » Mon Mar 30, 2009 11:11 pm

Hey Dee,

You will remember. Put a yellow sticky note on the your steering wheel, so when you get in your car you can stick it on your purse and take into the docs with you.

The only way I get over the Kraft moments is to use yellow sticky notes everywhere.

I put them on my car window, with big black texter letters, MILK !

Otherwise I forget the godamn milk everytime :pmsl: :pmsl:

Love ya's Karen XX

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pinball wizard
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Postby pinball wizard » Mon Mar 30, 2009 5:53 pm

SH*T! Hope I remember to ask him after all this!
dee x

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Broni
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Postby Broni » Mon Mar 30, 2009 5:20 pm

I just assumed that it would be taken from the time that the initial effective treatment was finished - when the blood results and other tests came back within "ok" parameters following surgery, chemo and rads.

I too will be interested to hear what Dee's oncologist has to say :)
Broni

[color=blue]life isn't about waiting for the storm to pass - it's about learning to dance in the rain[/color]


DX 12/09/07 Gr 3 DCIS
RB Mastectomy, ANC 11/10/07
9/27 lymphnodes
Triple Neg
dose dense 4 x AC 4 x taxol
40 rads
Prophylactic LB mastectomy 17/12/09
Still dancing with NED, 7 years on


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