Triple Negs ..

To keep information about Triple Negative Breast Cancer together and easier to access.
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Broni
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Postby Broni » Fri Jan 25, 2008 2:11 pm

thanks Nav :wink:
Broni

[color=blue]life isn't about waiting for the storm to pass - it's about learning to dance in the rain[/color]


DX 12/09/07 Gr 3 DCIS
RB Mastectomy, ANC 11/10/07
9/27 lymphnodes
Triple Neg
dose dense 4 x AC 4 x taxol
40 rads
Prophylactic LB mastectomy 17/12/09
Still dancing with NED, 7 years on

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Postby yowyow » Fri Jan 25, 2008 2:09 pm

Its off Dr Susan Loves website - think American but worth asking
I guess, I know che che on this website is doing a triple neg trial
and another member from NZ is on the same trial, so they are happening here too.
Nav
every day without laughter is a wasted day !!!!


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Postby Belinda » Fri Jan 25, 2008 2:08 pm

Belinda
Dx 3 Jan 2007, 4x3x3 cm IDC and 2 other tumours 1.5cm each, 6/19+ nodes, ER-, PR-, HER2+, 4 AC, 12 weekly Taxol + herceptin, 30ish rads, Herceptin finished May 08, currently watching a lung nodule.

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Broni
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Postby Broni » Fri Jan 25, 2008 1:55 pm

Broni

[color=blue]life isn't about waiting for the storm to pass - it's about learning to dance in the rain[/color]


DX 12/09/07 Gr 3 DCIS
RB Mastectomy, ANC 11/10/07
9/27 lymphnodes
Triple Neg
dose dense 4 x AC 4 x taxol
40 rads
Prophylactic LB mastectomy 17/12/09
Still dancing with NED, 7 years on

yowyow
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Postby yowyow » Fri Jan 25, 2008 12:38 pm

Nav

every day without laughter is a wasted day !!!!




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Broni
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Postby Broni » Mon Dec 10, 2007 8:18 am

thanks Nav - nice to read something that is not all negative ( :pmsl: ) about triple negs!!!
Broni

[color=blue]life isn't about waiting for the storm to pass - it's about learning to dance in the rain[/color]


DX 12/09/07 Gr 3 DCIS
RB Mastectomy, ANC 11/10/07
9/27 lymphnodes
Triple Neg
dose dense 4 x AC 4 x taxol
40 rads
Prophylactic LB mastectomy 17/12/09
Still dancing with NED, 7 years on

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ozzie
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Postby ozzie » Sun Dec 09, 2007 10:20 pm

As you said Nav a very interesting read...thanks for that.
:hugs:
oz
Some Days are Diamonds ,Some Days are Stone.

DCIS,IDC,Grade 3 Stage3, ER/PR + HER2- (Aug 96) Bone ,Skin mets, (Dec06) lung mets (May 08)stage 4

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Postby yowyow » Sun Dec 09, 2007 2:48 pm

Nav

every day without laughter is a wasted day !!!!




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Postby yowyow » Fri Nov 30, 2007 6:32 am

thats what I've read too cas, also that it peaks between yr 2-3 blah blah blah

Yep, you've got your over and done with now :hi5:
Nav

every day without laughter is a wasted day !!!!




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Postby cas145 » Thu Nov 29, 2007 10:33 pm

Yep trip neg. if going to have recurrence most likely to happen with in two years of orriginal dx so lucky me I have had mine :pmsl: Cas

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Postby jayem » Sun Nov 25, 2007 7:36 pm

It's a good site Janette and one I had not been to before.

None of my results mention Comedo necrosis or cribriform type with calcification, just the IDC and DCIS. Interestingly although the bc was officially graded 2 it mentions areas of grade 3 and stage 2 overall.

Buggar though, they do mention lymphovascular invasion. Not good. Oh well, I refuse to go looking for trouble, it will find me in plenty of time if it has a mind to so do.
Jan

Dx 20 Sept 2006, 2 cm IDC + DCIS, 1/16+ node, ER+, PR+, HER2-, 4 AC, 4 Taxol, 33 rads
CFEM Trial 5 years Arimidex, 5 year SOLE trial Femara
Dx Aug 2016 neuroendocrine cancer in pancreas, mets to liver, abdominal nodes, hip, skull, scalp and breast.

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Janette
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Postby Janette » Sun Nov 25, 2007 7:26 pm

Comedo necrosis is the cells dying off quickly as I understand it.
Janette


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Janette
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Postby Janette » Sun Nov 25, 2007 7:20 pm

Sorry Nav, didn't want to confuse anyone. The formatting is crook. I didn't want to post the link because some of the information on the same page is a little confronting and I don't know how accurate and updated it is.

What people need to remember is that cancer by it's very nature is usually grade 3 according to what I have read and seems to be the case looking at dxs.
Janette




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Postby yowyow » Sun Nov 25, 2007 7:19 pm

here is another one - going googling

I also had DCIS 5cm in total

first op.. was the IDC and extensive high grade ductal carcinoma in situ of cribriform type with calcification.

re- excision.. DCIS cribriform type with associated comedo necrosis and occasional microcalcifications.

Hmmmm lots big words for a sunday night :ouch:
Nav

every day without laughter is a wasted day !!!!




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Postby yowyow » Sun Nov 25, 2007 7:10 pm

Janette - your post explains it all :pmsl: :pmsl: :ouch: :ouch: :ouch:
Nav

every day without laughter is a wasted day !!!!





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