Roll call

To keep information about Triple Negative Breast Cancer together and easier to access.
Snowbunny
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Re: Roll call

Postby Snowbunny » Sat Jun 04, 2011 2:39 pm

Hi there! Just checking in as well.
Diagnosed triple neg 2 years ago. 27 weeks pregnant with a 3year old.
34 at the time.
Grade 3, 3 lymph nodes. Mastectomy.
Chemotherapy 4 x EC; 4 x Taxotere
25 Rads.
Life is a bit of a roller coaster these days, but the kiddies keep me busy. :) sounds like you all know what I mean.
Bec x

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Urthgirl
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Re: Roll call

Postby Urthgirl » Fri Jun 03, 2011 12:54 am

Hi there,
I'm another triple negative.
Dx July 2009
Finished chemo Dec 2009
Finished radiotherapy Feb 2010
Fell pregnant June 2010
Gave birth to a healthy baby boy March 2011
Coming up to my 2 years since my bc journey began
NED :xfingers: stays that way

Cheers Bronny

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Re: Roll call

Postby Kazzie61 » Sat May 28, 2011 12:12 pm

Yowyow
I just love reading & hearing stories such as yours!
Congratulations on passing the 5 year mark, that's gotta be the best feeling :v_happy:
It's so easy to get caught up in all the negative that we read (especially when we're triple neg).
I'm at home recovering from my bilateral mastectomy/recon & truly feel like I can now start to put all this behind me & move on :clap:
Thanks for giving inspiration.

Karen x
Dx 5/10/10, Stage 1, Grade 3, Triple Negative.
Lumpectomy, Node Negative, 6 x TC Chemo, BMX with immediate DIEP 20/05/11
Dx stage 4, bone mets 20/05/12, liver mets 07/02/13
Radiation June 2012
Monthly Xgeva June 2012
Chemo...Paclitaxel/Gemzar December 2012
Chemo...Xeloda Feb 2013

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Re: Roll call

Postby yowyow » Sat May 28, 2011 11:38 am

Hi everyone

I was dx in 2006 - the day I turned 36
my boys were 4 & 5yo at the time

I have no family history of BC
(maternal uncle with prostate at 60yo)

Triple Neg
1.4cm IDC - 5cm DCIS
2+ nodes
Had lumpectomy followed by partial mastectomy followed by bilateral mastectomy
with immediate recon with silicon implants
(got all the IDC with lumpectomy but margins were always not clear on DCIS)

I did 6 x FEC at freemasons in melbourne

So, I just passed the 5 years from dx
Last edited by yowyow on Mon Jun 06, 2011 8:39 am, edited 1 time in total.
Nav
every day without laughter is a wasted day !!!!


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Re: Roll call

Postby vespa » Sat May 28, 2011 8:56 am

Hey Sheree, I was diagnosed triple neg 2 years ago, age 34 (with a 9 mth old and 5 year old). No family history of breast or ovarian whatsoever. Genetic testing done, results negative but as they tell me this is limited by science, so not necessarily negative as such. So I certainly don't assume I don't have some kind of gene mutation. Lumpectomy and SNB followed by 3 x fec, 3 x taxotere, 30 x rads.

There's lots of us triple negs about, but I know for me I don't get on here very often as I am very busy with work and kids and getting back into "normal" life.

Ginny.xx.
Diagnosed 7 May 2009 @ 34 yrs - lumpectomy and SNB 22 May 2009 - 1.9cm triple neg nodes all clear - FEC x 3/Taxotere x 3 - 30 x rads.

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Re: Roll call

Postby shereejoy » Thu May 26, 2011 11:35 pm

Age 36, Mother 3 and 5 year old BOYS
Dx 9/3/11, Surgery 22/3/11 - IDC, 3 x tumours (5cm, 4mm, 3mm) - Multifocal, 13/26 lymph nodes -All nodes taken, Stage IIIC, Triple Neg, RB Mastectomy
M/C 21st Feb 2011 - Saved my life!
IVF completed 4/4/11 - 3 eggs
Reconstruction late Feb 2012/ early March 2012

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Re: Roll call

Postby shereejoy » Thu May 26, 2011 11:33 pm

Age 36, Mother 3 and 5 year old BOYS
Dx 9/3/11, Surgery 22/3/11 - IDC, 3 x tumours (5cm, 4mm, 3mm) - Multifocal, 13/26 lymph nodes -All nodes taken, Stage IIIC, Triple Neg, RB Mastectomy
M/C 21st Feb 2011 - Saved my life!
IVF completed 4/4/11 - 3 eggs
Reconstruction late Feb 2012/ early March 2012

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Re: Roll call

Postby VanessaV31 » Thu May 26, 2011 11:27 pm

I am the first in the family to have breast cancer. My sisters are going to get tested now also. Fingers crossed it's negative for them.

Have u been tested?
June 2010 - Diagnosed with EBC, Triple Negative, IDC, 5cm, grade 3, 1/18+ nodes, clear margins
August 2010 - Diagnosed with ABC to Bones and Lungs, Triple Negative
October 2010 - Spinal Fusion and started PARP tiral
May 2011 - LB Mastectomy

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Re: Roll call

Postby Lisa8 » Thu May 26, 2011 11:25 pm

I tracked my mutations back through mum having ovarian cancer, which was caused by either BRCA 1or 2 and then through my grandfather.

Scanziety - how anxious I am having scans. Sends me into a meltdown!

Fertility - need to decide if I want another child very soon. Many factors for and against. Have tried for a few months this year but no luck.

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shereejoy
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Re: Roll call

Postby shereejoy » Thu May 26, 2011 11:22 pm

Age 36, Mother 3 and 5 year old BOYS
Dx 9/3/11, Surgery 22/3/11 - IDC, 3 x tumours (5cm, 4mm, 3mm) - Multifocal, 13/26 lymph nodes -All nodes taken, Stage IIIC, Triple Neg, RB Mastectomy
M/C 21st Feb 2011 - Saved my life!
IVF completed 4/4/11 - 3 eggs
Reconstruction late Feb 2012/ early March 2012

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Re: Roll call

Postby VanessaV31 » Thu May 26, 2011 11:19 pm

Another triple negative here. There r a few of us on this forum.

I was diagnosed June last yr. Had a lympectomy and 18 nodes removed. Only 1 tested positive.

I was 29 weeks pregnant when diagnosed.

I have a 2 year old daughter and a 10 month old son.

I also tested positive for BRCA 1
June 2010 - Diagnosed with EBC, Triple Negative, IDC, 5cm, grade 3, 1/18+ nodes, clear margins
August 2010 - Diagnosed with ABC to Bones and Lungs, Triple Negative
October 2010 - Spinal Fusion and started PARP tiral
May 2011 - LB Mastectomy

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shereejoy
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Re: Roll call

Postby shereejoy » Thu May 26, 2011 11:17 pm

Age 36, Mother 3 and 5 year old BOYS
Dx 9/3/11, Surgery 22/3/11 - IDC, 3 x tumours (5cm, 4mm, 3mm) - Multifocal, 13/26 lymph nodes -All nodes taken, Stage IIIC, Triple Neg, RB Mastectomy
M/C 21st Feb 2011 - Saved my life!
IVF completed 4/4/11 - 3 eggs
Reconstruction late Feb 2012/ early March 2012

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shereejoy
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Re: Roll call

Postby shereejoy » Thu May 26, 2011 11:13 pm

Age 36, Mother 3 and 5 year old BOYS
Dx 9/3/11, Surgery 22/3/11 - IDC, 3 x tumours (5cm, 4mm, 3mm) - Multifocal, 13/26 lymph nodes -All nodes taken, Stage IIIC, Triple Neg, RB Mastectomy
M/C 21st Feb 2011 - Saved my life!
IVF completed 4/4/11 - 3 eggs
Reconstruction late Feb 2012/ early March 2012

Lisa8
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Re: Roll call

Postby Lisa8 » Thu May 26, 2011 11:09 pm

Hi again,

I was dx when my son was 9 months old, so I understand the stress of having young children and worrying about the future. It is very scary.
I didn't really change my diet. I saw a naturopath a few months after treatment finished but I just couldn't do all if the things she suggested such as no meat, regular juicing and only organic veggies. I believe i have a balanced diet, but still enjoy treats. I do exercise more now and try to keep fit.

I don't have siblings but my Mum died of ovarian cancer at 48. The genetic testing wasn't too bad as I strongly suspected I would have a positive result. I just didn't expect the two mutations!

I was very anxious about recurrence the first year of diagnosis and read so much on the internet. I don't really have answers on how to cope with the fear. Exercising and getting stronger helped mentally and just being busy with my little boy was a great distraction. I only recently began seeing a psych who is helping me with scanziety and also helping me with decisions regarding fertility and hysterectomy, which I need to do in the next few years.

The only other advice I have is too not look too far ahead or worry about things that haven't happened. Easier said than done, I know but it was a strategy that I used and still use when I was feeling overwhelmed.

Hugs :hugs:

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Re: Roll call

Postby hibiscusmum » Thu May 26, 2011 10:58 pm

I'm a triple neg, diagnosed 12 months ago at 40. Axillary clearance & 2 tumours removed. It was on my pec muscle. Have had chemo & radio & came out the other side, all good now. I have had gene testing done & it was negative. Been seriously thinking about having a double mastectomy lately. Only cos my LB is a tad sore & hard & it worries me.
Have my mammogram & check with my BS on the 14th so I'll wait till then & see wots going on.


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