A guide for women with metastatic breast cancer - pdf from NBOCC website

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Janine
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A guide for women with metastatic breast cancer - pdf from NBOCC website

Postby Janine » Thu Sep 04, 2008 8:20 pm

This is a helpful book that you may have received when you were dx'd with advanced bc. It is a little dated now (2001) so some of the info re treatments etc may be behind the times.

CONTENTS:
Chapter 1 What is metastatic breast cancer? ...................................10
• How metastatic breast cancer develops
Chapter 2 What does this diagnosis mean for me? .........................14
• Your initial diagnosis of metastatic breast cancer
• How long will I live?
Chapter 3 Treatment of metastatic breast cancer ............................19
Chapter 4 Deciding about treatment ..............................................24
• Deciding about your treatment
• Your involvement in treatment decisions
• Your treatment team
• Feeling comfortable with your treatment team
• Obtaining a second opinion
• Obtaining information about cancer and treatment options
• Questions to help you decide about your treatment
Chapter 5 The symptoms of metastatic breast cancer.....................33
• What are the symptoms of cancer in the bone?
• What are the symptoms of cancer in the lungs or pleura?
• What are the symptoms of cancer in the liver?
• What are the symptoms of cancer in the brain?
Chapter 6 Hormonal therapies........................................................41
• How do hormonal therapies work?
• Who can benefit from hormonal therapies?
• What is the evidence about the effectiveness of hormonal therapies?
• What are the different types of hormonal therapies?
• What hormonal therapy would be best for me?
• What are the side effects of hormonal therapies?
• Questions you may ask about hormonal therapies
Chapter 7 Chemotherapy................................................................52
• How does chemotherapy work?
• What is the evidence about the effectiveness of chemotherapy?
• Who manages chemotherapy treatment?
• How are chemotherapy drugs given?
• Where will I get chemotherapy?
• How often will I need to have chemotherapy?
• What are the side effects of chemotherapy?
Chapter 8 New anti-cancer treatments............................................69
Chapter 9 Radiotherapy ..................................................................71
• When is radiotherapy recommended?
• Who will manage my radiotherapy treatment?
• How many radiotherapy treatments will I need?
• Where will I have radiotherapy?
• What are the side effects of radiotherapy?
• Questions you may ask about radiotherapy
Chapter 10 Surgery............................................................................78
• Surgery for cancer in the breast
• Surgery for cancer that has spread to the bone
• Surgery for cancer that has spread to the lungs
• Surgery for cancer that has spread to the brain
• Surgery for other reasons
Chapter 11 Complementary and alternative therapies......................83
• What are complementary and alternative therapies?
• Questions that you may ask an alternative health practitioner
Chapter 12 Clinical trials...................................................................88
• What is a clinical trial?
• Why are there clinical trials?
• What are the advantages and disadvantages of participating in a clinical trial?
• How do I decide whether to participate in a clinical trial?
Chapter 13 Pain management...........................................................91
• The main causes of pain
• Key messages about cancer pain
• Reporting your pain
• Drug treatments for pain
• Other medical treatments for pain
• Non-medical pain relief methods
Chapter 14 Controlling any other symptoms .................................106
• Hypercalcaemia
• Tiredness
• Nausea and vomiting
• Loss of appetite
• Poor sleep
• Constipation
• Mouth ulcers
• Lymphoedema
• Immobility
• Distended or enlarged abdomen
• Breathing difficulties
• Headaches
• Change in thinking ability
• Pressure sores
• Incontinence of the bowel or bladder
Chapter 15 Palliative care ................................................................126
Chapter 16 Coping with your feelings and where to get more support and information.....................................129
• Your feelings
• Treatment of anxiety and depression
• Deciding about whether to continue, change or stop any paid work
• The impact of your diagnosis and treatment on your sexuality
• Lesbian women
• Support for women diagnosed with metastatic breast cancer
• Suggestions from women who are living with metastatic breast cancer about coping with the diagnosis
Chapter 17 Dealing with the impact of the cancer on your family and friends ........................................................151
• Feelings your partner, family or close friends may have about your diagnosis
• Ways to help your partner, family or close friends cope with your diagnosis
• Support services for partners, families and friends of women diagnosed with metastatic breast cancer
• Living alone or being isolated from others
• Talking with any children/grandchildren about your diagnosis
• Talking with any teenage children about your diagnosis
Chapter 18 Practical support...........................................................161
• Accommodation while undergoing treatment
• Care for you at home
• Care for you outside your home
Chapter 19 Putting your affairs in order.........................................171
• Unfinished business
• Spiritual or religious comfort
• Coping with the ‘no more cancer treatment’ decision
• Fears about dying
• Practical aspects of preparing for death
Chapter 20 Financial support..........................................................179
• Costs
• Where to get information about financial assistance
• List of places to contact for financial assistance
Appendix 1 Medical tests ................................................................
Janine

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