Anemia on Femara

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jayem
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Re: Anemia on Femara

Postby jayem » Fri Aug 10, 2018 9:43 pm

I am so pleased that there is still some treatment to try and my thoughts and prayers will be with you as your medical team pull out all the stops. xx
Jan

Dx 20 Sept 2006, 2 cm IDC + DCIS, 1/16+ node, ER+, PR+, HER2-, 4 AC, 4 Taxol, 33 rads
CFEM Trial 5 years Arimidex, 5 year SOLE trial Femara
Dx Aug 2016 neuroendocrine cancer in pancreas, mets to liver, abdominal nodes, hip, skull, scalp and breast.

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Janette
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Re: Anemia on Femara

Postby Janette » Wed Aug 08, 2018 9:16 pm

Hi Judy,
Gosh you've been through so much. Know we are in your corner, wishing and hoping for good results. Thanks for letting us know. :hugs:
Janette

Dx LCIS Dec 1997, Dx IDC, DCIS, bilateral LCIS Oct 2005 er+pr+her2-
Bilateral Mastectomies, expanders and silicone implants

The new girl
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Re: Anemia on Femara

Postby The new girl » Tue Aug 07, 2018 10:28 pm

:hugs: hi judy its so good to hear from you,you have been through so much and that was a very long hospital stay,I pray the treatment works and you go into remission
Sending you hugs
Rosa

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Re: Anemia on Femara

Postby ruth1 » Mon Aug 06, 2018 9:40 am

Judy so nice to see you post - omg - 76 days in hospital is a test of endurance - that is ghastly - you must be so glad to see home. Facing this treatment must be very daunting and I really hope you manage without the dreadful effects of chemo. I can imagine the hanging around the hospital time and effort when you don't feel well is very hard to d0 - its the having to get ready, travel, wait around, do the treatment then travel back again - exhausting stuff. Here's hoping there is some positive news after this and the marrow donors are standing by which, as you say, is a big problem solved. I send you huge hugs and hope this isn't too taxing. Please keep posting when you are up to it. :hugs:
Dx IDC 2cm grade 3 ER/PR pos. DCIS grade 3, fam hist metastatic BC. Bi lat mastectomy, FEC x 4, surgical revision pending. AI x 5 yrs Femara

JudyB
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Re: Anemia on Femara

Postby JudyB » Sun Aug 05, 2018 2:21 pm

Sorry that I have been so remiss in updating you all and thank you for enquiring after me. I got home (to my son's place in Mt Evelyn) after being in hospital for around 76 days. I have had two treatments to try and get me into remission but they haven't worked so I am starting a new treatment on Monday as an out patient at Peter Mac. This will be administered by two injections a day for seven days. I believe the side affects are not as severe as chemotherapy, ie no loss of taste buds and no nausea but we shall see. We then wait for a month and have another bone marrow biopsy to see if I am in remission. They are not expecting me to be in remission at this stage, they are trying to get me on a trial for some miracle drug but to meet the criteria I have to first have tried the injections and had no luck. So then I will have another round of the injections at the same time as an oral drug and we are hoping that this will work. I was told that it might take a few goes so we are looking at four months of this treatment. If this doesn't work I'm not sure if there is anything else they can do. If it does work I will then have a bone marrow transplant which will mean at least another month in hospital and then hopefully I can move on with life. The good news is that they have found two 100% bone marrow donors which is great.

I'm enjoying being 'home' but not really looking to this week where I will be spending a lot of time hanging around the hospital filling in time. I have to have blood tests and am fairly sure that I will be blood transfusions etc. I already feel a bit faint and am pretty sure my hemoglobin levels are lowering.
DX Sep 09, LB mast with axillary diss. Grd 2 Ductal Carc. 50mm diam. Margins clear. 1/13 nodes. OR+ PR+, HER2- . FEC x 3, Taxotere x 3, RADS x 30, Tamoxifen, DIEP reconstruction April 2011, Femara 2013, Oophorectomy 2013.

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kiwijan
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Re: Anemia on Femara

Postby kiwijan » Tue Jul 24, 2018 3:18 pm

sending my best wishes to you Judy. :hugs:
Stage 1; Grade 11; bc. ER/PR positive; lumpectomy and rads. Finished 5yrs of tamoxifen on 1/11/10

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Janette
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Re: Anemia on Femara

Postby Janette » Mon Jul 16, 2018 10:38 pm

I've also been concerned about how Judy is doing. I hope youre doing well Judy. :hugs:
Janette



Dx LCIS Dec 1997, Dx IDC, DCIS, bilateral LCIS Oct 2005 er+pr+her2-
Bilateral Mastectomies, expanders and silicone implants

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schoolteacher
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Re: Anemia on Femara

Postby schoolteacher » Sun Jul 15, 2018 6:17 pm

We haven’t heard from you for awhile Judy. Are you home yet? How are you coping with treatment? :hugs:
DX OCT 08, 9mm Her2+ grade 3 tumour and DCIS. Nodes clear, wide local incision, unclear margins so LB mastectomy, chemo Taxotere Carboplatin Herceptin Tram Flap Nov 2011

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Re: Anemia on Femara

Postby The new girl » Mon May 21, 2018 11:15 pm

:hugs: sending you hugs judy,I hope your treatment goes well with no side effects,I wish you were not going through this
Rosa

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Janette
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Re: Anemia on Femara

Postby Janette » Sun May 20, 2018 3:27 pm

Thanks for the update Judy. It's a pain when things were going so well for you. Care couldn't be better no matter where you live I would think. Sounds a bit more positive. :hugs:
Janette



Dx LCIS Dec 1997, Dx IDC, DCIS, bilateral LCIS Oct 2005 er+pr+her2-
Bilateral Mastectomies, expanders and silicone implants

ruth1
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Re: Anemia on Femara

Postby ruth1 » Fri May 18, 2018 7:15 pm

Judy I am so upset to hear this awful news - the very small progress from poor to intermediate is at least something in the right direction. I am also so glad you got to Peter Mac quickly. Having to face chemo again must be so hard - keep thinking about getting home to get through it. I do hope that is very very soon Judy. Sending you a huge hug and keep us updated on how you're doing. :hugs:
Dx IDC 2cm grade 3 ER/PR pos. DCIS grade 3, fam hist metastatic BC. Bi lat mastectomy, FEC x 4, surgical revision pending. AI x 5 yrs Femara

JudyB
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Re: Anemia on Femara

Postby JudyB » Fri May 18, 2018 9:44 am

Chris, the pathologist from Dorevitch rang me personally and begged me to go to hospital rather than the GP. We did this at bairnsdale and when the dr there said we needed to see the gp for a referral to a specialist we stood our ground and said that i was at too high a risk to do that. It would have been another 2 days before i could see anyone. Out of desperation he rang peter mac and they insisted they transported me to melbourne. The big risk was that i would get an infection and not get to hospital quickly enough.
DX Sep 09, LB mast with axillary diss. Grd 2 Ductal Carc. 50mm diam. Margins clear. 1/13 nodes. OR+ PR+, HER2- . FEC x 3, Taxotere x 3, RADS x 30, Tamoxifen, DIEP reconstruction April 2011, Femara 2013, Oophorectomy 2013.

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schoolteacher
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Re: Anemia on Femara

Postby schoolteacher » Fri May 18, 2018 6:58 am

While I am devastated that you have to go through another ordeal so soon after retiring to your beautiful new home, it sounds like the medical staff has responded quickly which is reassuring. I was worried about you being in the country after stories I heard on here when I first joined. They have whipped into action very quickly.
Hoping the chemo isn’t too rugged and they can alleviate any side effects. :hugs:
DX OCT 08, 9mm Her2+ grade 3 tumour and DCIS. Nodes clear, wide local incision, unclear margins so LB mastectomy, chemo Taxotere Carboplatin Herceptin Tram Flap Nov 2011

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Re: Anemia on Femara

Postby JudyB » Thu May 17, 2018 10:58 pm

Hi everyone, yes the diagnosis of leukemia was confirmed and i started chemo this evening. I will be on it for seven days which is called induction and i guess if you were to compare it to breast cancer this would be the surgery part. Once my blood counts are back up they will give me another bone marrow biopsy which hopefully will show i am in remission, similar to NED after an op. If i am in remission they will do two more mop up chemos to catch anything that may have been missed and probably do a bone marrow transplant if we can find a donor. The cycles are monthly and i will probably only get about three days out of hospital inbetween them. Its going to be quite a while before i see home again.

Thank you for the well wishes, it is appreciated and whille things are still not great i have been changed from prognosis poor to prognosis intermediate which is good.
DX Sep 09, LB mast with axillary diss. Grd 2 Ductal Carc. 50mm diam. Margins clear. 1/13 nodes. OR+ PR+, HER2- . FEC x 3, Taxotere x 3, RADS x 30, Tamoxifen, DIEP reconstruction April 2011, Femara 2013, Oophorectomy 2013.

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Janette
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Re: Anemia on Femara

Postby Janette » Thu May 17, 2018 9:24 pm

Will do Ruth.
Janette



Dx LCIS Dec 1997, Dx IDC, DCIS, bilateral LCIS Oct 2005 er+pr+her2-
Bilateral Mastectomies, expanders and silicone implants


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