Anemia on Femara

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ruth1
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Re: Anemia on Femara

Postby ruth1 » Thu May 17, 2018 8:50 pm

Janette I don't have any other contact for Judy so would you mind passing on my best to her please and we are hoping like heck she is doing ok. Thanks so much. Ruth
Dx IDC 2cm grade 3 ER/PR pos. DCIS grade 3, fam hist metastatic BC. Bi lat mastectomy, FEC x 4, surgical revision pending. AI x 5 yrs Femara

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Janette
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Re: Anemia on Femara

Postby Janette » Thu May 17, 2018 8:43 pm

Hi Rosa,
Nice to see you on the forum. Yes Judy is still in hospital I believe from Facebook. I'm sure she will update us here when she gets a chance. :hugs:
Janette

Dx LCIS Dec 1997, Dx IDC, DCIS, bilateral LCIS Oct 2005 er+pr+her2-
Bilateral Mastectomies, expanders and silicone implants

The new girl
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Re: Anemia on Femara

Postby The new girl » Thu May 17, 2018 4:56 pm

:hugs: hi judy,I haven't been on the forum for a while so catching up and was sad to hear you have been going through some rough times are you still in hospital? Sending you hugs and hope all is good
Rosa

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Re: Anemia on Femara

Postby StephO » Mon May 14, 2018 1:33 pm

Sending my love Judy.
I hope you’re are okay, as much as you can be.
Xx

ruth1
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Re: Anemia on Femara

Postby ruth1 » Sun May 13, 2018 7:12 pm

I'm glad you are in a big hospital for this Judy - smaller regionals would not have the facilities. You must be feeling so bad at present - wish I could hug you and tell you its ok. Those tests tomorrow will be daunting and I hope you get results quickly and not be kept waiting for ages. Ive been thinking of you today and wondering so thx for letting us know. :hugs:
Dx IDC 2cm grade 3 ER/PR pos. DCIS grade 3, fam hist metastatic BC. Bi lat mastectomy, FEC x 4, surgical revision pending. AI x 5 yrs Femara

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Janette
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Re: Anemia on Femara

Postby Janette » Sun May 13, 2018 6:09 pm

Thanks for the update Judy. I hope you have answers very soon. :hugs:
Janette



Dx LCIS Dec 1997, Dx IDC, DCIS, bilateral LCIS Oct 2005 er+pr+her2-
Bilateral Mastectomies, expanders and silicone implants

JudyB
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Re: Anemia on Femara

Postby JudyB » Sun May 13, 2018 4:48 pm

I have been admitted to the Royal Melbourne hospital. I have had blood transfusions and tomorrow i am having a bone marrow biopsy which will tell us whether it is (aml) leukemia or something else i cant remember the name of. Both cancer and bother caused by chemo making tge prognosis worse. Treatment will start asap and i have a feeling i will be feeling very sick in a few days. I will keep you informed
DX Sep 09, LB mast with axillary diss. Grd 2 Ductal Carc. 50mm diam. Margins clear. 1/13 nodes. OR+ PR+, HER2- . FEC x 3, Taxotere x 3, RADS x 30, Tamoxifen, DIEP reconstruction April 2011, Femara 2013, Oophorectomy 2013.

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Janette
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Re: Anemia on Femara

Postby Janette » Sat May 12, 2018 4:40 pm

Judy, fingers crossed for the best outcome. Great that no one is stuffing around with this. :hugs:
Janette



Dx LCIS Dec 1997, Dx IDC, DCIS, bilateral LCIS Oct 2005 er+pr+her2-
Bilateral Mastectomies, expanders and silicone implants

ruth1
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Re: Anemia on Femara

Postby ruth1 » Sat May 12, 2018 3:26 pm

Judy would you not be better off going to a major city hospital? Perhaps getting immediate care is the goal but bigger hospital should be able to do better testing?
Dx IDC 2cm grade 3 ER/PR pos. DCIS grade 3, fam hist metastatic BC. Bi lat mastectomy, FEC x 4, surgical revision pending. AI x 5 yrs Femara

JudyB
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Re: Anemia on Femara

Postby JudyB » Sat May 12, 2018 10:34 am

Thank you girls. I have spoken to someone at Bairnsdale hospital and we have been advised to go straight there. I may be admitted for further testing so I'll keep you all in the loop. At the very least I think I am looking at a transfusion and a bone marrow biopsy, something I have always dreaded.
DX Sep 09, LB mast with axillary diss. Grd 2 Ductal Carc. 50mm diam. Margins clear. 1/13 nodes. OR+ PR+, HER2- . FEC x 3, Taxotere x 3, RADS x 30, Tamoxifen, DIEP reconstruction April 2011, Femara 2013, Oophorectomy 2013.

ruth1
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Re: Anemia on Femara

Postby ruth1 » Sat May 12, 2018 9:05 am

omg Judy I feel for you soooo much - cant imagine what you are going through facing all this and the thought of test waiting etc. Its simply not fair that you get over the extremes and sort life out and have some peace and now all this. I am sending fingerscrossed hugs - please make sure you get the immediate care you need. :hugs:
Dx IDC 2cm grade 3 ER/PR pos. DCIS grade 3, fam hist metastatic BC. Bi lat mastectomy, FEC x 4, surgical revision pending. AI x 5 yrs Femara

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jezza
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Re: Anemia on Femara

Postby jezza » Sat May 12, 2018 1:36 am

Gosh....what a shock after things were going so well ( the move, leaving work). Don’t know what to say but you know what we all feel. All these scares...not fair! Hope you get seen ASAP. Please let us know. xxxxxxxxx

Jezza
Dx Jan. 1992 9mm Grade 3 IDC node neg. LB mast. Prophylactic RB mast. 6 months later. No chemo. No rads. Saline implants. 22 years NED. (No Evidence of Disease)

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Janette
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Re: Anemia on Femara

Postby Janette » Fri May 11, 2018 8:42 pm

Yes white cells are a different story. Try not to think the worst. They seem very much on the ball.

I can understand how you feel about cancer, after what you've been through. Hoping for the best, please keep us updated. :hugs:
Janette



Dx LCIS Dec 1997, Dx IDC, DCIS, bilateral LCIS Oct 2005 er+pr+her2-
Bilateral Mastectomies, expanders and silicone implants

JudyB
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Re: Anemia on Femara

Postby JudyB » Fri May 11, 2018 8:26 pm

Forget about my question. I just had a call from the pathologist, yes the pathologist, she bypassed the doctor because she was so concerned about me. Apparently my white blood cells are extremely low, low like when you are having chemo and she is concerned that I might get an infection and not get to hospital in time. She didn't like that I had to wait until Sunday to get to see a doctor. She wants them to send me to hospital for tests, ie stay overnight at least and the first test would be a bone marrow biopsy. Yes, she's concerned it could be leukemia caused by prior chemotherapies. I am so over all of this and the thought of doing chemo again for the third time makes me sick to my stomach. I looked up AML leukemia and the treatment is chemotherapy and radiotherapy to the head. 26% survival rate after 5 years! My oncologists are surprised that I am still here after the aggressive form of uterine cancer that I had and then this comes along to ruin the day. What are the chances of surviving two high risk cancers? OK, yes I know, I may not have leukemia but this pathologist sure is concerned. No more googling for me, I shall wait and see what pans out.
DX Sep 09, LB mast with axillary diss. Grd 2 Ductal Carc. 50mm diam. Margins clear. 1/13 nodes. OR+ PR+, HER2- . FEC x 3, Taxotere x 3, RADS x 30, Tamoxifen, DIEP reconstruction April 2011, Femara 2013, Oophorectomy 2013.

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Janette
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Re: Anemia on Femara

Postby Janette » Fri May 11, 2018 8:23 pm

Hi Judy,
I take it your haemoglobin is low. Have you ever had a colonoscopy? Often they will do one for low hb.

I'm anaemic but not too badly. Try not to panic, my Dr contacted me to come in and when I saw my hb level it wasn't particularly low for me.

Needless to say do the suggested and please let us know how you go.

I love the photos of your new country relocation, it looks gorgeous. :hugs:
Janette



Dx LCIS Dec 1997, Dx IDC, DCIS, bilateral LCIS Oct 2005 er+pr+her2-
Bilateral Mastectomies, expanders and silicone implants


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