Aussie Breast Cancer Forum

Andrea have you been on Faslodex? It works differently to the Ai’s. It is an intramuscular injection given initially fortnightly for the first 2 doses then monthly. The other combo I have been is Afinitor and Aromasin I had very few side effects on A/A. Again I did have the mutation that Afinitor ta...

Hi Andrea, Do you have a lymph node or tumour that is easily accessible? Prior to starting the trial at Peter Mac I had a tumour on my mastectomy sutureline biopsied to confirm my ER/ PR status and to test if I had the mutation the drug was targeting. The trial I was on was ABT 199 I think it is sti...

I thought I would give my old friends here an update. I recently became very ill. My cancer has spread to both my lungs and to the pericardium around my heart. My oncologist was monitoring me closely but I unexpectedly got very sick very quickly. I ended up having 2 litre drained from my left lungs ...

Andrea I am her2 negative as far as I know. I recently had surgery and my oestrogen and progesterone have changed from positive to negative. I don’t think her 2 changes to positive as often as ER/ PR loses its sensitivity. So I am assuming I am triple negative now. Cancer is sneaky the way it mutate...

Hi Andrea sorry you have progression. Have you thought about clinical trials? I am not sure where you live but I have also accessed Palboclicib on a compassionate access program through Peter Mac in Melbourne. I also did a clinical trial at Peter Mac. Wishing you all the best with your treatment and...

Hi I would like to catch up as well. Great idea Judy!

Christine I don't have lepto mets and I can't navigate this forum. Every time I change the settings they revert back. Within a topic all the responses are jumbled. I used to check every day and post often now I find it too frustrating.

Hello to everyone!

Mighty Oak if you commit to the 30 minutes 5 times a week it will get easier. Five years ago I decided I wanted to lose weight so I actually went to a hypnotist. I have never worked out whether the hypnosis worked or the fact that my husband thought it was a waste of money and I was determined not t...

Thank you I have had a lovely day with my daughter and we had a family gathering on Saturday night as that was my husband's birthday.

Jeanette I have had the same problem so I started sorting by last month of posts. However now the posts within a topic are jumbled. I must admit since this change to the forum I don't come to the forum very often as it is difficult to navigate.

Well my run with the trial drug Abt199 has come to an end as the tumour on my chest has increased by 30% and now broken through the skin. I also have a few more bone mets and my pleural effusion has increased slightly. I was on 600 mg daily and the trial has now been opened up at a higher dose. To b...

Mighty Oak it is good to have most of your treatment behind you. I have had similar side effects from all the aromatase inhibitors. I have experienced hot flushes and sore stiff joints. In the morning or after sitting for awhile I hobble around like an old lady but once I get going I am fine. There ...

Congratulations Rosa on baby Jake he is gorgeous!

Great news Judy. The one time it is good to be told you are boring!

Winterlong you have definately had a trying time lately. I think for peace of mind ct scans and a bone scan are a good idea. It is hard going for scans but when they come back all clear it will be well worth it. Best wishes.
Tracey xx