Search found 72 matches

by Linda M
Mon Jan 26, 2009 8:15 pm
Forum: Secondary Breast Cancer
Topic: Zometa
Replies: 16
Views: 5546

Zometa - Zoledronate

Hi I had Zometa every 3 weeks for 2 years with no side effects. The reason I stopped was the long term effects are not known. There is a lot of concern over Osteonecrosis of the jaw with long term biphosphonate treatment. Since then I have a treatment every 8 months when I start to get bone pain, it...
by Linda M
Mon Jan 26, 2009 4:04 pm
Forum: Secondary Breast Cancer
Topic: How long does hormonal therapy work for?
Replies: 14
Views: 4642

Hormone Therapy duration

Hi Barbra Hormone therapy worked for me for 3 years, during that time I had femara, Aromasin & Tamoxifen, my lung lymphangitis became worse and bone mets began to progress. Have just had a course of chemo (epirubicin) - my lungs improved and have just re-started Herceptin which I had been on pri...
by Linda M
Fri Jan 09, 2009 4:51 pm
Forum: Secondary Breast Cancer
Topic: When do you start to re-build your life or can we?
Replies: 9
Views: 3223

Many thanks for your comments

Hi Many thanks for your comments, I have already completed a couple of units prior to my diagnosis, so only have 6 units to complete my masters. I am planning to take it slowly doing 1 unit over a semester and see how I go. In some ways I look forward to study again, in another ways I worry I am put...
by Linda M
Tue Jan 06, 2009 7:29 pm
Forum: Secondary Breast Cancer
Topic: When do you start to re-build your life or can we?
Replies: 9
Views: 3223

When do you start to re-build your life or can we?

I have had metastatic breast cancer now for 40 months, continue to work 30 hours a week and have had ongoing treatment - chemo, herceptin, hormone therapy & zometa During this time, I have lived enjoying the moment, not dwelling on the past or thinking of the future. My quality of life is not as...
by Linda M
Wed Dec 31, 2008 9:16 am
Forum: Secondary Breast Cancer
Topic: Article - Living with cancer is much more than a win/loss equation
Replies: 17
Views: 5757

Many thanks Janine

Hi Janine This article is so beautifully put and is exactly how i feel. I agree with you all "Living with cancer" is the terminology we should be using for advanced disease. We as a group are the ones that need to change the stigma and societal beliefs about cancer. Education is so badly needed and ...
by Linda M
Fri Jul 11, 2008 7:23 pm
Forum: Secondary Breast Cancer
Topic: TRACEY - THINKING OF YOU
Replies: 27
Views: 6071

great news

Hi Tracey

That is really good news, now you need to do something really nice for you!

Cheers
Linda
by Linda M
Thu Jul 10, 2008 11:25 am
Forum: Secondary Breast Cancer
Topic: TRACEY - THINKING OF YOU
Replies: 27
Views: 6071

My thoughts are with you

Hi Tracey My thoughts are with you today, its never easy scan results, Fingers crossed that all is okay. Chic flicks are a great distraction, the girls and I love watching them and having a good laugh of an evening. Last weekend we watched 27 dresses & Jane Austens bookclub - both I could defini...
by Linda M
Tue May 27, 2008 7:53 pm
Forum: Secondary Breast Cancer
Topic: Young women with secondary breast cancer
Replies: 17
Views: 5988

What is classified as young?

Hi Jo I was diagnosed with ABC at age of 42, still going strong at 45. I know of a couple of women in the Hunter in their late 30's My issues have been having 2 young girls aged 7 & 14 at time of diagnosis, being a single mum. My Kids have certainly kept me going, my work & sheer determinati...
by Linda M
Mon May 19, 2008 6:02 pm
Forum: Projects, Issues and Actions
Topic: Budget provides provision for funding of breast prosthesis
Replies: 3
Views: 19952

Budget provides provision for funding of breast prosthesis

The budget handed down last week has provided funds for funding of breast prosthesis. It is believed that this funding will be made available through the National Breast and Ovarian Cancer Centre. But details about this are not yet available To read more, here is the link: http://www.bcna.org.au/con...
by Linda M
Mon May 19, 2008 5:55 pm
Forum: NSW
Topic: Hunter Breast Forum - 18th May 2008
Replies: 1
Views: 17901

Great day

Hi Great day attended by 350 participants. Prof Pillar from Adelaide was the key speaker who gave 2 excellent sessions on lymphoedema, Cath Adams an Oncopsychologist spoke on Cancer & Lymphoedema impact of mood Sally Ewin a physiotherapist went through Lymphoedema exercises & the wonderful D...
by Linda M
Wed May 07, 2008 7:28 pm
Forum: Secondary Breast Cancer
Topic: Bone mets
Replies: 21
Views: 6093

fractured ribs

I have spontaneously broken ribs on 2 occasions now, I treat it with Nurofen & Paracetamol, only need it for a few days and the pain needs to settle. Last rib I fractured, I sneezed and heard it pop. Paracetamol is generally used with opioids (Oxycontin) as it reduces the amount of Opioid that y...
by Linda M
Sat May 03, 2008 6:25 pm
Forum: Partners, family, friends
Topic: single parents
Replies: 19
Views: 42675

time heals

Hi Leanne I totally agree with Cheryl's comments. It is now 3 1/2 years since I left my ex-husband. His next Partner is in the process of leaving him now. You don't need the stress, material things really don't matter in the end, your health is what is important. Pain is exacerbated by emotions, it ...
by Linda M
Sat Apr 19, 2008 10:29 pm
Forum: Secondary Breast Cancer
Topic: zometa
Replies: 11
Views: 3747

Osteonecrosis of Jaw

Hi Cheryl Money well spent, Dental checks are essential when you are on Zometa (or any biphosphonates). I was told by my Oncologist that the risk was there for 5 years after your last dose of Zometa - The risk of ONJ is extremely rare if you have good teeth and regular checks. I don't think you can ...
by Linda M
Sat Apr 19, 2008 5:49 pm
Forum: Secondary Breast Cancer
Topic: zometa
Replies: 11
Views: 3747

Zometa & Port

Hi Cheryl Yes I have a port, I have Herceptin at the same time. A port was put in when I had my ovaries out, we presumed at that stage that I was going to need a port soon. As such my veins are fine, as I only had one dose of Herceptin & Zometa using a vein. A port is sore for the first month, n...
by Linda M
Fri Apr 18, 2008 6:10 pm
Forum: Secondary Breast Cancer
Topic: zometa
Replies: 11
Views: 3747

32 months of Zometa

Have been having Zometa for 31 months now.

Always over 15 minutes

Only side effect has been aching legs for a day or 2

Regards
Linda

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